Source: Below. Like many such so-called support groups there is no great incentive anywhere to keep the web site going. Drug companies will watch these "support groups" start up on the web and if, and only if, they start praising the use of some psychiatric drug will there suddenly, somehow, appear enough (hidden) support to keep the web pages on the web. This one was a typical useless support group -- like the title says, "poor souls wandering around in the sewer of health data, looking for a speck of clean and useful water. A support group will ONLY help people go down to some lowest common denominator of misery. If you want to get "better" then stay away from these groups. If you are healthy and sane, you will be dragged down, or you will leave in frustration that no one makes any sense. If you are very depressed you may enjoy sharing your misery and getting sympathy for a while. These groups are self-defeating, but there are many of them.
FMPSC Archives, January 16, 2001
... My reg. doctor was
thinking I had polymyalgia
reumatica because my sed rate was
high. I went to a new Rheumy to be examined
and he said no I didn't have it. ...
www.fmpsc.org/wall/ark/arkjan16-01.htm
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January 16, 2001
Archive Index 
Wallabies' Links 
The WALL
Carlton
Lynch-Elkview, West Virginia
Jan 11th 2001 I think 12:24
am You have got to be kidding! You mean nobody has
posted, since I last posted. I feel privelaged to have
this Wall to myself. LOL!!! See ya!
Carlton Lynch- Real
Bad Fog!
Jan 11th 2001 12:31 am My
fault, I see several postings, since I last posted.
Everyone take care.
1/11/01 Carol--CT
Hi everyone.
Tonight I had my Fibro support group. It's really a good
group of people. Even though things get repeated for the
newbies, I always seem to pick up on something that I
didn't know before. Right now we are trying these new
electrical patches for pain. I guess you could say we are
the guinea pigs for them in this area. As long as we fill
out their survey we will keep getting another set of
patches each month at the meeting (free). So far the
response has been pretty good. I'll let you know what
becomes of this after a few months trial. My reg. doctor
was thinking I had
polymyalgia
reumatica because my sed rate was high. I went to a
new Rheumy to be examined and he said no I didn't have
it. I have Fibro and Osteoarthritis. At least something
is settled. I will be needing a left knee replacement
done but it was suggested that I wait until summer and
better weather. I'm afraid to have it done and screw up
my back anymore than it already is. Oh well, I don't have
to decide on that one until next week when I see him. The
doctor is having me use a cane for now because my knees
and legs get very weak and I fall. Well now that I've
written a whole story I better give someone else a
chance. I hope everyone gets a "good" nights sleep. Lots
of gentle hugs, Carol
Linda W/Indiana
1/11-Thurs-good morning all.
I hope you are still sawing the zzzz's. I had a question
for you all. I've had these episodes where I smell things
out of the blue that aren't really there. I've just
always chaulked it up to another strangeness I have. It
just lasts for a few minutes at a time and others think
I'm crazy because I keep looking around for the root of
the smell. I never connected it to the Fibro but was
talking with a good friend about this who also has Fibro
and she gets these too? Do any of you experience this?
I've never read anything about it being a symptom but who
knows? I have focusing and eye problems too like some of
you do. Had things checked out there too but results are
always okay. I was talking with my bro one day, he has
trauma induced Epilepsy and is on medicine to control it.
It sounded to him as if it were some kind of 'aura'. He
used to get these right before he went into a seizure. I
know I don't have Epilepsy but these 'auras' are the best
way to describe these goofy episodes. I woke a while ago
with a pounding headache, took a Flexeril with morning
meds and the pain is subsiding. What the heck am I doing
up at 3am? I'll 'see' you all again soon, Hugs...Linda
Sue K Jan. 11
Yep well as you know LINDA I
too get the smell thing and vision thing.....Could I be
that friend?? LOL I thought I was crazy too! Guess I'm
not, hmmmm, my family may have something else to say
about that, ha ha. Sure hope today proves to be a better
one for the FMily! Love and hugs, Sue
1/11/01-Blanche W.
1/11/01-Blanche Linda W.I
also have problems with my eyes.I did just go for my
yearly check up.They said has changed..There are days
where I can't stand to have my eyes open..A couple years
ago ,I had floaters and still do ,they never went away .I
had no idea what was going on so I went to a specialist
.Since then I have been back to him now he tells me I am
getting cataracts on both eys....My regular eye Dr. had
never mentioned it and neither did the specialist the
first time I went to him.This was all with in a years
time. I don't understand how all of a sudden the
cataracts are here. I also need a knee replacement but I
have decided not to have it done until I can't walk any
more.Altho I do know several people that had it done with
out any trouble at all. I'll wait thank you....
Kathy in Me.
Jan.11,01
Posting from the cold wilds
of Maine... Hi to all my wonderful Wallabies! We could
all make quite a symphany of painful screams out across
the frozen lake; but I would surely hate for us to give
the wildlife heart attacks or make them all run away!!!
Guess we'll have to contain ourselves (one more time).
lol The burning in my feet was very common for a while
and now has let up for a time. Smelling strange smells is
another common thing with FM. It is in some of the lists
with doctors and such. I get it all the time. I don't
know about aura's, but some smells can make me sick. As a
result I try to stay away from confined air spaces. I
like it when fresh air is available. Especially when I'm
riding in a car, etc. Shoulders and arms seem to be
bothering quite a few of us. Mine has traveled to my
ribcage front and back on my left side. It bothers so
much at night sometimes I can't lay down any longer and
have to get up. I take Paxil and although I still have
some sleepness nights and moments of depression; I
couldn't make it easily from one day to the next without
it! It has given me back my stability to relax and reason
out problems and crisis. My doctor increased it once to
the dosage now of 30mgs. My doctors and people around me
noticed the change after just a few days. I did too!!!!!
I don't know if it's right for the one (I can't remember
who said they were starting to take it), that is starting
out with it, but I'd be in a complete fog if I didn't
have it. What storms everywhere... Hope all my fibromites
are warm and cozy and they can get some good REMs. The
sun is trying to come out here at the lake, but it's
Sooooooooo Cooooold... Wind chills are right down there.
Stay warm and cozy all. SUE E in Idaho, You tend to get
TOO WARM. Be careful: Making a heating pad out of your
carpet isn't the answer, believe me! Fibro Fog is such a
wonderful thing, isn't it? hugs, Kathy
Chris 11 Jan
Hooray! Other folk get The
Smells. It's so good to feel normal.
Carol B in WV
1/11...two days in a row...I
have to log in and also share that my sence of smell
comes and goes, due to multiple allergies. I kid the
others at work, cause i can't smell a thing after I have
worked a couple of days--even with taking two or three
allergy meds in one day, and doc knows that I do this...I
do notice a tinny smell before I have a nosebleed, and
also the sent(sp) of oranges before I have a whopper of a
cluster headache. Oh, did I also mention that I have
atypical migraines--those are the ones with the pain and
sensitivity to light, but no nausea. Can't wait to see if
these mutate into silent migranes..LOL... I tell my
parents that I have headaches for both me and Dad, and
Mom agrees. The only pain he's had in his life was
post-op and during his heart attacks....On the other
hand, Mom has osteoarthritis and lots of pain from other
sources. Now how did I get on that line....Glad to see
those other foggy WVians still come around here....be
seeing you all at the Wall.....hugs!
Shirley wishing
that it would warm up in FL
1/11. Hello FMily. Today has
been a rough on for me. I woke up witih a migraine. My
mother had a doctors appointment at 11:00 am. I took a
couple of Tylenor and laid back down for a little bit.
Was feeling a little better so got cressed and headed for
my mother's house. I got about a mile from my house when
the nausea hit me. Here I am driving down the road with
not one place to pull over and start throwing up. I
finally came to a turn lane, pulled over and called my
sister-n-law. She took my mother to the Doctor, and I
went back home to clean up. Fortunatelymost everything
was on me. If I hadn't felt so bad, I probably would have
been laughing at my self.BOBBY NJ I sometimes have the
low back pain. I have an herbal pack I use. It is made up
of rice, flax seed, and herbs. Put it in the microwave
for 2 minutes, then put it on the back. Feels so good.
MARYBETH I have been having foot problems for over 3
years. My right foot was burning on the ball of the foot.
Dr. injected it with cortisone several times. I had an
Interdgital Nueroma, so he removed that. Then it feels
like I'm walking on a big marble. I have some hamer toes,
and one was dislocating when I wore shoes. So he fixed
that. Now I have to have the rest of my hamer toes fixed.
The hamer toes are causinf the metatarsel bone to sublux,
and feels like I'm walking on a marble. MAMAFROG when i
get to feeling a little better, I will e-mail you some
pictures of Dollywood. {{{Gentle Hugs}}} to all. Shirley
can somebody scrape me
off the floor & back to an upright position please?
Thursday, the 11th...I am
almost too exhausted to move, but tom'w is moving day for
my Mom to the senior apt.....so, if I can just get
through this weekend.... but now, because it is winter &
we just don't know what to do with all of this "stuff"
(39 years of accumulation of her "stuff"), it is piled
high in my garage & oh, it is depressing to look at it
all! There will have to be one huge garage sale in the
spring (& even that's a depressing thought to get ready
for). But this too shall pass & life will go on. Sorry I
haven't had a chance to read for days & days, but I wish
you all well. too pooped to pop, maggie
1/11/01 Mommafrog
(Judy)
got the 'smells'too but mine
are more 'chemical' no oranges! I seem to be suffering
more from injuries than fibro right now or have I just
gotten used to the fibro lol My torn up shoulder is still
driving me nuts with pain and now my hands are
alternately throbbing or shooting pain on the backs have
appt w/dr tomorrow - need to take in a list but I can't
remember all the stuff I need to ask him about... the
joys of fog! They've pumped(?) out over 3 liters of fluid
from my dad. Just after I posted yesterday I found out it
was fluid around his heart and he was put in ICU his
rythum (sp) has improved a bit but there is still a lot
of fluid. And my mom is telling me not to go see him
because the hospital polished the marble floor in the
lobby to the point she doesn't think I can walk on it!
But dad told me by phone he just needs rest anyway. Hugs
and warmth to all.
marybeth..sc
1/11/01..Good evening all
well it is going to rain tonight and oh boy does the
fibro really know it!its funny how the fibro knows more
about the weather than the weather people do,yes I've
smelt the strange smells too and noone else did makes you
feel strange doesn't it?LINDA I've had vision problems
also think I see things at times BLANCHE I have floaters
or black spots or what ever,Dr says I have dry eyes and
my sight jumps from one day to the other,I wear try-fockles
think thats right and at times I can'see a thing my
algeries don't help my eyes eather,it is really strange
how this DD can effect so many parts of our body,well
guess I had better soon try to get some zzzzz got to go
to grocery store tomorrow two or three hrs to get ready
to get there two hrs there and six or seven hrs to get
over it.hugs to all my friend and hope for a better day
tomorrow...thanks for being here...marybeth
Sue K. Jan. 12 (i
think)
How about itching feet ( on
the bottom) anyone else have this. Could be just the time
of year I get such dry skin, but never had this bad of
itching on the bottom of my feet. Oh and the tingling and
numbness feeling in my feet and hands. Well my SSD lawyer
called yesterday and told me that my hearing is scheduled
for Feb 6th. Oh how I hate these things.....been to 2
already and then after fighting since '92 for SSD, they
said they lost my file....argh! They have pieced some of
it together but say I have to go for another hearing.
Well....here I go again. Please keep your fingers
crossed, it sure would help with my medical care costs
that insurance doesn't cover. You know all the co pays
and meds etc.... I'm very sleepy today and want to crawl
back into bed with this hurtin' fibro bod, but can't do
it today, got a few things I need to do. I'm on here
trying to keep my eyes open....yaaaaawwwwwwwwwwwwn!
Here's hoping today is a good day for all my freinds at
at the wall. gentle hugs, Sue
Bonna, WV 1/12/01
1/12 Noon:15 Really down
today. Have been in pain all week and soooo tired. Feels
like I have bowling balls attached to my wrists, ankles
and around my neck. Started taking down my Christmas
decorations. Does it count when you move them from one
room and stick them in another that's closer to where
they belong? Maybe tomorrow will be more energetic and I
can get them all put away. Need to do it soon cause they
are really beginning to bug Scrooge. Sorry to hear about
all the folks who need surgery or who have taken bad
spills. My dad is also in the hospital. He went in
Wednesday evening with chest pain. Still no diagnosis
from the doctor. I feel guilty cause when he was here
over the weekend, he baked bread, cooked most of the meal
and even mopped my kitchen floor while I did nothing. In
my defense, I tried to do several things and got run out
cause this was their Christmas gift to me. Well, I've
probably sent everyone into a deep depression by now so
I'll close. Maybe I'll force myself out for a walk and
see if I can change my attitude. Love and Hugs to all!
Bonna,WV
Jan. 12,01 Merrill
Wilson
I need some advice on
exercises I can do myself at home. Can you help me? mew
Blanche W. 1/12/01
1/12/01-Blanche I'm not sure
if I am allowed to put this on the site but I'm going to
give this a try .When ever I'm down I need something to
pick me up .Here is a web site I'm sure you will get a
kick out of .I hope I don't offend anyone .
http://liftyourspirit.homestead.com/GloomeeBusters2.html.
I have sent some of you some from this site I thought I
would like to share it with all of you .I know I need a
good laugh ,best medicine there is .Be sure and check
more on the site others then this one .If I don't see
this posted I will know that I can't do this anymore.....
Enjoy ,I promise you will be in for a good laugh ...
Debby in Seattle
1/12. Whew, made it through
the week...now gonna enjoy the nice L-O-N-G weekend, yay!!!!
I got to try out a motorized cart today. Someone gave my
hubby's brother an old cart, so hubby fixed it up for me,
got new batteries and new seat, derusted it, and I took
it to work today. So I was zipping all around today, to
the bathroom, the lunchroom, up and down the halls. Of
course, the techs I work with had to come up with all
these ideas to jazz it up...they were gonna put a rollbar
on it, give me an ooogah horn, paint lowrider flames on
it, make me wear a hardhat, etc....I heard just about
every woman-driver, speed demon joke there is...oh well.
But I tell ya, it sure beat the heck out of hobbling
around on those dang crutches!!!! I think my arm muscles
are permanently shortened!!! It hurts sooo much to
straighten my arms...I have to massage the insides of my
arms before I can straighten them out. I also found out
exactly how NON-handicapped-accessible our building is!!!
We have the "obvious" things like large restroom stalls
with bars on the walls, and that was ok...plenty of room
to get my cart in and get on and off the potty...but it
was nigh impossible to open the restroom door and
maneuver my cart inside...no automatic button to open the
door and allow you time to get inside before it closes,
yuk. I am making a list of all the things that need to be
made handicapped-accessible, and I plan to route it to
administration, human resources, and all the managers. If
it was hard for me, with just one bum leg, it would be
impossible for someone who is totally wheelchair-bound!!
WSF management WILL hear from me on this!!! Fortunately,
my own manager is totally behind me on this, so I'm
counting on him to be a big help. Well, there's a whole
long weekend stretching ahead, and it is crying for me to
start vegging. By Tuesday, I should have grown roots and
sprouted green leaves, heehee. Sweet dreams to all, and
may tomorrow bring us another day closer to healing.
Linda W/Indiana
1/13-Saturday morn-Oh boy,
you guys have made my day with all who responded about
the smelling question. It's good to know I'm not looney
tunes as sometimes normals perceive me! So, the next time
I get this, you can bet I won't go around looking for the
source. The sun finally came out on Thursday and things
are melting more. Going to get up into the 40's today and
tomorrow which we needed before the next round of snows
come in. Have had the great opportunities to watch the
packs of deer feeding in the corn fields across the road
from us. The moon has been so bright at night, and with
the snow on the ground you can see them pretty well. I've
hadn't had the money to refill some of my meds. I know
this has been my biggest source of pain. I wrote an
almost bum check yesterday to get them all. I have to
tell you, withing a few hours of taking the Vioxx, I
finally got a reprieve from the pain and I haven't needed
the Darvocets. I know the Vioxx is an arthritic pain med
but I don't know how it works on the Fibro and MPS.
Possible I've been getting more arthritis in the darned
spine and neck-dang! Before I go, I have to ask you to
please send prayers and wishes for our 'old hippy', Nancy
in Louisiana. She has had 2 mammo's and now needs to meet
with a surgeon on Monday. It's an 80 percent chance she
has breast cancer and my heart just aches for her. I'm
not sure how many people here remember her, a lovely lady
that supports so many. Her addy (with her permission) is:
rlemke1@earthlink.net I hope you all get much needed rest
this weekend and that your days will be a little easier.
Take care, friends....Linda
Bobbi in NJ--Jan 13
Hi FMily. Everybody is hurting so much. LINDA W.-I get
halos often, then a mild migraine or headache. I used to
get terrible migraines, then after menopause, they
lessened. BLANCHE-I will be needing neck and back surgery
someday, and I'll wait until I can no longer stand the
pain. CAROL-CT-Good luck on the knee replacement surgery.
I'm sure it will be fine. SHIRLEY-What a trip you had.
Thanks for the lower back tip. I'll try anything.
MAGGIE-Much good luck with the move. That is a difficult
one. Take care. MAMAFROG-Sending prayers for your father.
MARYBETH-SC-I get floaters and those black spots together
with dry eye. I use Refresh PM Lubricant Ointment and eye
drops for it. My focus is so messed up that I have three
different pairs of glasses. I used to sew and read a
lot--no more. SUE K.-I get that darn numbness and
tingling in my feet mostly. It's annoying and bothers me
when I walk. Good luck on getting your SSD. We have so
many symptoms, no wonder our friends and family don't
understand. When you read our posts, we sound like a
bunch of hypochondriacs--NOT. This is real and it is
draining. Hope you all have a nice weekend and a better
week ahead. Warm hugs to all. Bobbi
Delaine Inman, MS,RN,C,HNC 01-14-01
My name is Delaine.I am a 50 year old female
Registered Nurse who was diagonosed with fibromyalgia
about 10 years ago. I was able to continue work until May
of 1999, but it took a great deal of energy to manage the
FMS and left me very little energy for anything else. I
did gentle yoga stretches and walked for exercise, ate
healthy foods, practiced stress management and took
Elavil 10 to 20mg at bedtime. I had left bedside nursing
and management and was teaching cardiac patients at a
large hospital in Nashville, TN. I loved my job. I want
to share my story in hopes it might save anyone with FMS
from having the added burden of yet another mysterious
and frustrating challenge in your life. In Jan. 1999 I
developed a syndrome called Benign Essential
Blepharospasm. I had worked as a nurse for 27 years and
had never heard of it. It is a brain disorder of unknown
cause and no known cure that affects the muscles of the
eyes causing forceful spasms of the eyes and extreme
light sensitiviy.It is more common in women in their
50's. However it is occuring at earlier ages and to more
men everyday. It causes difficulty in driving, riding,
watching TV/movie or computer screens, reading and
performing activities of daily living due to functional
blindness and discomfort. It can be progressive, moving
down the face and affecting speech and swallowing, tongue
thrusting, neck drawing down, to the side or backwards.
It can proceed to dystonias(uncontrollable movements)in
the rest of the body. Believe me, I am not trying to
scare or diminish the difficulty you may have with FMS.
But BEB made FMS move way down on the list of my problems
to deal with. BEB can be induced in lab animals by
decreasing dopamine levels and giving them dry eyes.
Elavil(and many of the drugs used to treat FMS) are on
the list of drugs that have a 20-30% chance of trigging
dystonias if taken for long periods of time. If you would
like to learn more, you can go to the Blepharospasm or
Dystonia websites. A drug list is given on the Dystonia
Website that you can click on page 2. I also had been
wearing disposable contacts for about 15 years which
added to my dry eyes. Thanks for your time. If you have
questions, please feel free to email me.
Callie 1/14
Good Morning FM'ily!! I slept so good last night!! I
don't know if any of you have tried to use Breathe Right
strips to help you sleep better. Well I tried one last
night for the first time, at the insistence of my
bestfriend and soulsister. Well after sleeping straight
through for 7 HOURS!!!! and then laying back down after a
quick bathroom trip for another 5 1/2 HOURS!!!! I can say
I think they totally work!!!! I suffer from sleep apnea
that is pretty severe from what others have told me... so
those completely worked!! And I feel great this
morning!!! My back hurts, but there isn't much I can do
about that, since breathing doesn't seem to affect the
bone-on-bone part of my spine but for the FMS pains..
well let's just say, I don't have ANY this morning!! It
feels so wonderful to not hurt! A doctor told me once you
can judge for yourself whether or not your pain is
chronic and severe if you notice it when it's gone for
even a moment. I totally notice the absence of pain this
morning!! And OMG it feels wonderful to not hurt!! I only
hope all the rest of my FM'ily is having a painfree day
as well. Please try the Breathe Right strips and see if
they work for you. If not you are only out a few measely
dollars.. but if they do!! Well YIPEE!! LOL *gentle hugs
and much love* And today is my husband's birthday!! And I
just had to ask him what the date was LOLOLOL I did the
same thing on my anniversary!! Okay.. so maybe it will
take a few days for the fog to lift totally LOL *hugs*
Jeanne Nichol
1-14-01
Does anyone else struggle w/ communications? Verbal?
Comprehension? I thought I had it under control w/ meds
and being aware of my limitations. I've had fibro for
years and the mental piece has been noticeable for the
past 4-5 years & if affecting my work. I ache 99% of the
time, can't sleep longer than 4-6 hours, hands and feet
freeze and am scared I'm taking taking too many meds. Am
treating myself to massages and do some walking. How can
I make things better?
Marilyn 1/14/01
Marilyn WI I to have the problem with smelling stuff
but it has come in handy a couple time. One windy night I
was out walking with my boy friend and smelled natural
gas down by the end of my block. He could not smell it
and when the gas company came they could not smell it But
when they used their gas detector tools they found that
there was a major leak under the ground. They all thought
I was crazy in the begining but really thankfull after I
was able to tell them where the leak was.Strange but I
look at this added ability as a blessing not a problem.
People have always told me that if you lose one of you
sences the other sences increase. My body is worthless
thanks to the fibro but my sence of smell and hearing has
excelled. I'm revisiting my problem of dizzy spells, it
was a problem a year ago and things settled down, now it
feel like I'm going to fall down backwards for no reason.
I have Monday off so I hope to see my doctor. I really
should not drive right now but I have to drive to get to
the doctor office. I think it might have something to do
with my TMJ. I need to sign off for the night but wish
all a good nights rest and a quit and painless week.
Theresa-Chgo
01-15-01 Monday
Hello fibro friends. I went to the doctor last week
and once again we are changing my meds. Bonnie: I ask her
why I was taking Prozac and Zoloft and she told me Prozac
would help during the day, and Zoloft has a tendencey to
help with sleep at night. In my case nothing helps with
sleep at night. So I am weaning off the zoloft and then
going to start Trazodone. Which I never heard of before.
Has any one been on it? Did it help with your sleep
problems? We are hoping that will help get me some sleep.
I also told her I didn't think the Ultram was really
helping my pain. But she didn't want to give me anything
stronger at this point. Well after my visit I ran out of
Ultram for a day. Guess what? It really does work. I
couldn't believe how one day without it hurts. Linda: You
told me that taking Ultram at night was keeping you up. I
always thought it would help me sleep better. I am taking
2 pills, 3x a day. Whats your input? Jeanne:
Concentration, what is that. When I talk I forget words
or even what the conversation is. When I write or type I
actually forget how to spell words. Can you believe that.
Simple words that I have been writing since 2nd grade go
blank in my mind. I also write words backwards, or when
talking merge 2 words together. Is any one else like
that. I feel so stupid sometimes when I am out with other
people. I wish I could wear a sign saying I have fm, I am
not brain dead, I just have brain fog. Callie: I too had
sleep apnea and severe horrible snoring. My family told
me this. I went to a sleep clinic and they confirmed my
dx. They suggested a c mask to wear at night or laser
throat surgery. I went with the surgery. I drove myself
to the dr and home afterwards. It is more of a procedure.
If you would like to more about it write and ask. It
worked for me, but is not for everyone. Bonna: I have
been doing the same thing as you. Moving boxes closer to
their storage place. My dining room table has become a
way stop for a lot of decorations. I haven't put some
away because my regular decor stuff is in the boxes. I
just am not in the mood to do the switch. I am hoping by
the end of the week I will be done. When I was out
walking last night I noticed that many people still have
their outside lights and decor on. This made me feel so
much better. So we are just extending the holiday season.
I hate this changing meds thing. It just seems that I am
never going to find the right dosage. All I want is to be
able to sleep. The pain is pain, and somehow I think I
could deal with that better if I could only sleep longer
than 2-4 hours a night. Rambling again. My brain is
definitely on slow speed today. Take care all. Theresa
TEN WAYS TO
KNOW IF YOU HAVE ESTROGEN ISSUES
1. Everyone around you has an attitude problem.
2. You're adding chocolate chips to your cheese
omelet.
3. The dryer has shrunk every last pair of your jeans.
4. Your husband is suddenly agreeing to everything you
say.
5. You're using your cellular phone to dial up every
bumper sticker that says: "How's my driving-call
1-800-***-."
6. Everyone's head looks like an invitation to
batting-practice.
7. You're convinced there's a God and he's male.
8. You can't believe they don't make a tampon bigger
than SuperPlus.
9. You're sure that everyone is scheming to drive you
crazy.
10. The ibuprofen bottle is empty and you bought it
yesterday.
Jan 15 Sue K
Yes, yes yes....uhhhhh, hmmm can't remember what oh
yeah now I remember, LOL. oops forgot again :o( No really
I have awful concentration problems etc.... and yes I do
feel brain dead like uh most of the time anymore. Oh and
my back space key is probably the most used key on my
keyboard, LOL. Went to see my physicologist today because
my lawyer needs the papers like yesterday he said and
although I know he will be good for my case, he still
just doesn't get it. He took me off the ambien because he
says if I'm taking naps then I don't need it. Well I told
him it didn't matter whether I did or didn't that the
only thing the nap did was help the pain a little. I've
even gone for quite sometime without taking a nap and ya
know it seems even worse when I don't. Anyway, he made me
cry so hard and I hate to do that. Not to mention I
already woke with a sinus aand migraine headache. Oh well
so he upped my effexor and took ambien away, which I
might add is the only thing that has ever helped me sleep
at night and wake during the morning not groggy. Well
nuff about me, you all take care and hoping today is a
good one. lots of gentle hugs, Sue
Cindy Degele Jan.
2001
Dreams and Reality. I think I dream Know and Wish more
then I ever have or do like I did when I was a child. All
I want is Happiness and then this is Reality you only
find it in yourself first. And seems how I'm Depressed I
find it hard to find Happiness with-in myself. I know I
have left impressions on Kids and they were all GOOD,
before I was Injured then discrimanited against and let
that Happen. As I should of been STRONGER. I feel so
WEAK, My hands do so less then before and I always over
do things when I want out of the BODY I have know. I
guess I just need to accept so much right Know and am
Having a Hard Time with it all. And it Doesn't help that
MY children Want the Mom they always New. I'm just really
tired. And needed to come back here to write as I have
been trying to fullfill a Dream (wish). And I don't
believe that it will but I will give it my all for know
as I believe only the Children will Have OUR Answers
Someday. As they will be the ones that grow up to be
Doctors. And I want a compassionet one. And there are not
many around any more. They just want their Money and to
be Paid. I don't think many care anymore and that is SAD.
Shirley
in FL
1/15 Hello FMily.I had to go to the Dr. again today.
Sat. I started getting Asthma, and Sat. night I could
tell it was getting worse. I called the Dr.'s office and
they said come in now. When I got to the Dr.'s office my
temp. was 101. I spent 3 weeks in TN walking in snow in
sandals, because I can't wear reg. shoes, and after I'm
home for 3 weeks I get sick. I was thinking maybe I
should go back to TN. A friend of mine sent this story to
me today, and I was LOLROFL, crying wheezing and
coughing. my neighbors probably thought I was dying. lol.
I hope you enjoy! SNAKE ALERT) Little harmless garden
snakes? Not... ALWAYS THOUGHT GREEN SNAKES WERE OK? READ
ON........ Green Garden Grass snakes can be dangerous.
Yes, grass snakes, not rattlesnakes. A couple in
Sweetwater, Texas had a lot of potted plants, and during
a recent cold spell, the wife was bringing most of them
indoors to protect them from a possible freeze. It turned
out that a little green garden grass snake was hidden in
one of the plants and when it had warmed up, it slithered
out and the wife saw it go under the sofa. She let out a
very loud scream. The husband, who was taking a shower,
ran out into the living room naked to see what the
problem was. She told him there was a snake under the
sofa. He got down on the floor on his hands and knees to
look for it. About that time the family dog came and
cold-nosed him on the rear. He thought the snake had
bitten him and he fainted. His wife thought he had a
heart attack, so she called an ambulance. The attendants
rushed in and loaded him on the stretcher and started
carrying him out. About that time the snake came out from
under the sofa and the Emergency Medical Technician saw
it and dropped his end of the stretcher.That's when the
man broke his leg and why he is in the hospital. The wife
still had the problem of the snake in the house, so she
called on a neighbor man. He volunteered to capture the
snake. He armed himself with a rolled-up newspaper and
began poking under the couch. Soon he decided it was gone
and told the woman, who sat down on the sofa in relief.
But in relaxing, her hand dangled down in between the
cushions, where she felt the snake wriggling around. She
screamed and fainted, the snake rushed back under the
sofa, and the neighbor man, seeing her laying there
passed out, tried to use CPR to revive her. The
neighbor's wife, who had just returned from shopping at
the grocery store, saw her husband's mouth on the woman's
mouth and slammed her husband in the back of the head
with a bag of canned goods, knocking him out and cutting
his scalp to a point where it needed stitches. An
ambulance was again called and it was determined that the
injury required hospitalization. The noise woke the woman
from her dead faint and she saw her neighbor lying on the
floor with his wife bending over him, so she assumed he
had been bitten by the snake. She went to the kitchen,
brought back a small bottle of whiskey and began pouring
it down the man's throat. By now the police had arrived.
They saw the unconscious man, smelled the whiskey, and
assumed that a drunken fight had occurred. They were
about to arrest them all, when the two women tried to
explain how it all happened over a little green snake.
They called an ambulance, which took away the neighbor
and his sobbing wife. Just then the little snake crawled
out from under the couch. One of the policemen drew his
gun and fired at it. He missed the snake and hit the leg
of the end table that was on one side of the sofa. The
table fell over and the lamp on it shattered and as the
bulb broke, it started a fire in the drapes. The other
policeman tried to beat out the flames and fell through
the window into the yard on top of the family dog, who,
startled, jumped up and raced out into the street, where
an oncoming car swerved to avoid it and smashed into the
parked police car and set it on fire. Meanwhile the
burning drapes had spread to the walls and the entire
house was blazing. Neighbors had called the fire
department and the arriving fire-truck had started
raising it's ladder as they were halfway down the street.
The rising ladder tore out the overhead wires and put out
the electricity and disconnected the telephones in a
ten-square city block area. Time passed -----------------
Both men were discharged from the hospital, the house was
re-built, the police acquired a new car, and all was
right with their world ------- About a year later they
were watching TV and the weatherman announced a cold snap
for that night. The husband asked his wife if she thought
they should bring in their plants for the night. She shot
him.
Linda
W/Indiana
1/15-Monday-Hello friends, I hope the week will go
okay for you. My pain has had to take a backseat due to
trying to care for Steve's mom. She has been on an
antibiotic since last Monday and has had nothing to eat,
just clear liquids. Her abdominal pain got worse last
night, we took her into emergency, had tests taken. We
were there for 6 hours, arrived back home well after
midnight. Woke early this morning to make appointment
with an OB/GYN surgeon because the CT scan showed
something wrong there, possibly an enlarged uterus. She
went through all the pelvic things, an ultrasound and
biopsy. He said he didn't see anything wrong there,
thought it was more to do with her colon. Went back to
primary physician, added another antibiotic and a follow
up on Thursday. Will repeat the CT scan to see if the
enlargment is still there. If it is, will then need to
set up appointments at a very good hospital and with
specialists in Ft.Wayne, which also has one of the
largest and best cancer care units around us. Yes, there
is a good chance she has colon cancer. Understandably,
she broke down and I held her. I've told her we need to
take one day at a time and pray this will resolve itself
without going any further, if it doesn't, we will be
right with her all the way. I tried laying down at 7:00
but couldn't sleep, I think I'm over tired, just laid
there thinking, so here I am. This is coming on too
quickly, on the heels of Steve's operations and
tests/biopsies for lung cancer. Sorry this is so long. I
haven't really vented in a while, I guess I just needed
to scream out to someone other than myself. I am so sorry
for all your pain I see in reading the posts. Just
remember you are all loved here, we have that common
ground to share. Try to take care of yourselves and thank
you for always being here..special hugs to you all..Linda
Shirley
in FL
1/17 1:30 AM.Hi FMily, I can't sleep, so I thought I
would catch up on my reading on the wall.MARYBETH SC I
have had floaters for years. sometimes they can be very
annoying. My eye Dr. doesn't seem to bee too concerned.
DEBBY IN SEATTLE If I didn't have my electric scotter
(motorized cart) I don't know how I would be able to get
around. I have a lift in the trunk of my car that lifts
it in and out for me. I'm not working now, but I wouldn't
be able to work even with my scotter. BOBBY NJ I have
been wanting to get a program and start working on my
family's geneology. I purchased a "Family Tree Maker". I
didn't know which program is the best, and I was able to
get this one for a very good price. The Dr. put me on
antibiotics (1/15) for the bronchitis, and prednisone for
the asthma. Can you beleive the pharmacy was out of
prednisone, and I can't start that until they get more in
later today (1/16). Have been using my nebulizer 4X a day
since Sat. but my asthma still got worse. I wish this
crazy weather would straighten out. I'm just rambling on,
and don't really know what I'm alking about. Think I
better quit and go to bed. {{{Gentle Hugs}}} to all,
Shirley
1-16-01
1:45 AM Linda J. in Oklahoma
HopI too smell things that no one else can. Seems like
my ears are over sensitive too. The fibrofog seems to be
around most of the time. My backspace key is the most
used key on my computer,also. It took awhile to find the
right combination of medicines to keep down the pain.
Right now the Trazodone helps me sleep. I seem to have
the blahs right now, & can't seem to pull out of them.
More snow is predicted tomorrow so guess I won't be out
much. Have to get groceries tomorrow so hope the snow
holds off til I get back home.Guess I need to take my
meds & go to bed. Hope my FMily has some good sleep &
gentle ((((((HUGS)))))) to all. Linda J
louise jan 16
good morning. THANK YOU everyone who sent me notes and
cards. if you sent me a note or a card and i did not
respond, i apologize. i lost all my email and only just
now got it back. i felt so lost without it. reminds me
how much i have come to depend on this magical machine.
more news on the foot: i bought a pair of shoes!! not
boats, which i have had to wear for the past year to
allow for the drat swelling up and down. i am wondering -
what will i do for a social life without all the doctors
to see? i am sure willing to find out. rofl! anyway -
hope you all have a great day. hugs...
Jan 16 Sue K
What a time for all of us, seems most of us are in the
same boat. But thank God we can come here and vent to
each other. I trully don't know what I would do without
this place and all of you. LINDA W- as you know my
thoughts and prayers are with you....and vent all you
want girl! LOUISE-I'm so glad you are back, i've missed
you and thought of you often. CINDY-Hang in there and
keep coming here to vent and get support. I totally agree
about the doctors, they really need to teach the new ones
coming up about compassion and that they need to CARE, I
mean trully care about there patients. Can you tell I'm
also down on docs?? BONNIE-where are you girl?? hope you
are doing all right. Well you all take care and try and
have a good day. gentle hugs, Sue
Megan Burns Jan 16 2001
hi, I'm Megan. I can't begin to tell you what a
hellish experience FMS has been for me and my twin
sister. I dont have to tell you, because you probably
already know first-hand what I'm talking about. As for
going outside to scream, I've done that many a time.
Sometimes I just scream, regardless of indoor or outdoor
location. One of the worst things about FMS, besides the
pain and my hair trying to fall out, is not being
believed by family members and doctors alike. I dont
think they'd behave this way to war veterans, but then
again, our war is a very internal one, isnt it? No bullet
wounds. No blood. No maiming. I've taken about all I can
stand. Is there any way to find a good doctor in NC who
will understand me? I already have a list of doctors
who've thrown their hands up and said,"Well, I give up".
I've done a lot of research, but am having trouble
pinpointing a good physician. The help would be deeply
appreciated. Thank you so much.
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