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Hopeless Diseases -- No Known Cause -- No Known Cure

Source:  Karl Loren Original Article

I was astounded when I stumbled onto this one!  I didn't know that there was such a vast network of inter-connected diseases that had so much in common.  It started for me when I decided to research Fibromyalgia.  I had heard the word over a several year period.  I even knew a few people who "had" it.  But when I started my research on Fibromyalgia I did what I usually do.

I entered this term into my favorite search engine, Google, and started looking at what I found.  I didn't preserve that first set of results, but I did it again on July 20, 2002, and those results are HERE.  (Incidentally, I use the Google search engine as a very powerful tool for my research -- you might benefit from reading what I can do with it! -- Click here.)

One thing I have learned when doing this type of research is that there was almost always some "foundation" or "institute" or whatever, supposedly non-profit group that had the number one ranked web site for the subject.

So, if you enter "fibromyalgia" in Google, you come up with the top ranked web sites for this word.  I've done that and published the results as for the top thirty webs HERE.  If you were a person who thought you might have Fibromyalgia, or were interested in this data for any reason, you would probably do what I did.  You might well click on the top ranked page, or scan down the list, even to the second ten, and even the third ten, looking for some short description in this Fibromyalgia list -- something that caught your eye.

But, you can bet that the first several web sites in that top ten would get the largest number of visitors.  So, naturally, I went to these top-ranked sites.  After I had done some of this I began to have a sinking feeling!  I began to see a common thread among these top sites -- that Fibromyalgia was being described as a disease with no known cause and no known cure.  Further, I saw that these pages were groups claiming to be in existence to "help" people with information and that they had the appearance of being non-profit -- and therefore "good?"

I then took one of those top ten web sites and did a thorough analysis of it.  That analysis is HERE.  That same web site is shown below as one of the top ten -- click here for it on this page.

I then did further research and wrote my major article about fibromyalgia -- HERE.

The above actions rather end this Chapter about fibromyalgia, but my major article on that subject left me wondering about all the other of dozens of hopeless diseases.  Click here to see my index list of hopeless diseases -- constantly being updated as I do new research.


Here are the top ten web sites for the search I did on July 20, 2002.  In each case I've copied the top logo or whatever seemed to best represent the group.  Each of these "logos" can be clicked to go to that web site.


Fibromyalgia Network

 

The Missouri Arthritis Rehabilitation Research and Training Center at the University of Missouri-Columbia

 

The American Fibromyalgia Syndrome Association, Inc.

 

 

Fibromyalgia &
Chronic Myofascial Pain

(FMS & CMP)

 

MEDLINEplus Health Information: Return to home page

 

a 501(c)(3) non-profit membership organization committed to the  promotion of  fibromyalgia education and awareness through the dissemination of quality, medically-accurate information

 

 

fibromyalgia

 

 

 

There are four images in this heading -- web address HERE.

 

 


The images above are "fragile!  That turns out to be another fascinating discovery I've made.  Many of these images, parts of the name or logo for these groups -- these "images" are actually made up of two or more separate parts.  What this means is that it is very difficult to COPY them.  It would appear that the web designers, here, had the mission to make it as hard as possible to copy their logos -- fearing that someone else would take the logo and put it up on some other web site?  In any event, I can think of no mechanical reason why some "image" would be deliberately broken into two or more parts for a web page.

So, now looking at each of these ten web sites concerning fibromyalgia in turn, here is what I found:

 

Web Address

Apparent Owner Of Site

Description

http://www.fmnetnews.com/

Fibromyalgia Network
PO Box 31750
Tucson, AZ 85751 US
Tel: +1 520 290 5508
Email: fmnetter@msn.com

Full Analysis Is Here

This web recommends psychiatric drugs and victim support groups

http://www.muhealth.org/~fibro/

Email: nyeda@uwec.edu

Apparently The University of Wisconsin

 
http://www.afsafund.org/

American Fibromyalgia Syndrome Association, Inc.
6300 E. Tanque Verde Rd, Suite D
Tucson, AZ 85715 US
Tel: +1 520 296 9900
Fax: +1 520 296 9900

 
http://www.myalgia.com/

Oregon Fibromyalgia Foundation
1221 SW Yamhill (Suite 303
Portland, OR 97205 US
Tel: +1 503 246 6944
Fax: +1 503 245 3935

 
http://www.sover.net/~devstar/ SoVerNet, PO Box 495, Bellows Falls, VT 05101

We are proud to be an underwriter and supporter of Vermont Public Radio and Vermont Public TV. We belong to a number of professional organizations, among which are: the Vermont Telecommunications Application Center, The US Internet Industry Association, The Internet Service Providers' Consortium.

 
http://www.nlm.nih.gov/medlineplus/fibromyalgia.html National Institutes of Health (NIH)
Bethesda, Maryland 20892
 
http://www.fmpartnership.org/

Fibromyalgia Association of Greater Washingto
13202 Valley Drive, Woodbridge
22191-1531, VA 22191 US
Tel: +1 703 551 4160
Email: icamail@ichelp.org

 
http://www.fibromyalgia.com/home.htm Hansen Video Corporation
PO Box 5956
Statesville, NC 28687 US
Tel: +1 704 871 0222
Fax: +1 704 872 2973
Email: fibrodoc@fibromyalgia.com
 
http://fmaware.org/

National Fibromyalgia Awareness Campaign
2238 N. Glassell, Suite D
Orange, CA 92865 US
Tel: +1 818 957 1415
Fax: +1 818 957 1400

 
http://www.fibrohugs.com/

FibroHugs Fibromyalgia Support
167 Scarth Street NORTH
Regina, SK S4R 2Z4 Canada
Tel: +1 306 545 3634
Fax: +1 306 545 3634
Email: webmaster@fibrohugs.com

 

It is possible that a much more detailed examination of each of these web sites would reveal that they may NOT be presenting themselves as non-profit, non-commercial sources of educational information about Fibromyalgia.  On the surface it appears that each of these web sites represents an altruistic effort, on the part of some non-profit group, to help those who suffer from this hopeless disease called "fibromyalgia."  You would assume that the "help" would be unbiased and would not unduly promote one particular approach, or even one specific brand of product.


Fibromyalgia Tender Points Identified By The American College of Rheumatology in 1990

(at digital palpation with an approximate force of 4 kg)

Anatoman1a.gif (596334 bytes)

1 & 2, Occiput: bilateral, at the suboccipital muscle insertions.

3 & 4, Low cervical: bilateral, at the anterior aspects of the intertransverse spaces at C5-C7.

5 & 6, Trapezius: bilateral, at the midpoint of the upper border.

7 & 8 , Supraspinatus: bilateral, at origins, above the scapula spine near the medial border.

9 & 10, Second Rib: bilateral, at the second costochondral junctions, just lateral to the junctions on upper surfaces.

11 & 12, Lateral epicondyle: bilateral, 2 cm distal to the epicondyles.

13 & 14, Gluteal: bilateral, in upper outer quadrants of buttocks in anterior fold of muscle.

15 & 16, Greater trochanter: bilateral, posterior to the trochanteric prominence.

17 & 18, Knee: bilateral, at the medial fat pad proximal to the joint line.

 

Official Diagnostic Criteria Developed for Fibromyalgia By the American College of Rheumatology (ACR) in 1990*

(1) History of widespread pain:

Definition: Pain is considered widespread when all of the following are present: pain in the left side of the body, pain in the right side of the body, pain above the waist, and pain below the waist.  In addition, axial skeletal pain (cervical spine or anterior chest or thoracic spine or low back) must be present. In this definition, shoulder and buttock pain is considered as pain for each involved side. "Low back" pain is considered lower segment pain.

(2) Pain in 11 of 18 tender point sites on digital palpation:

Digital palpation should be performed with an approximate force of 4kg.  For a tender point to be considered "positive" the subject must state that the palpation was painful.  "Tender" is not to be considered "painful".

Note: For classification purposes, patients will be said to have fibromyalgia if both criteria are satisfied.  Widespread pain must have been present for at least 3 months.  The presence of a second clinical disorder does not exclude the diagnosis of fibromyalgia.

* from Frederick Wolfe et al, "The American College of Rheumatology 1990 Criteria for the Classification of Fibromyalgia: Report of the Multicenter Criteria Committee," Arthritis and Rheumatism, Vol. 33, No.2 (February 1990) ,p. 171.


 

 

 


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